#MHAMBC Migraine & Headache Awareness Month #5: Evita: Don’t cry for Me Argentina: We don’t want to be pitied, but we aren’t always open about telling people how they can help us.

June Migraine awareness month

I have gotten behind on my blogging due to an extended Migraine and family illness, so I am trying to catch up. Due to recent tragic events it is more important than ever to get the word out so that people understand Chronic Migraine Disease.

 

For today’s blog it’s all about helping you to help me, but don’t pity me.

It is so hard for us that have Chronic Migraine Disease to share our stories with others due to our past history. We are often scorned, scoffed, called hypochondriac, told it’s “all in our heads” or “it can’t be that bad” or “can’t you just take an aspirin for that”. So after years of hearing comments like that we put up a protective shell around us and tend to ward off people’s inquires on how we fell and we just say “fine” when really we are not. The Stigma of Chronic Migraine Disease is almost as debilitating as the disease itself. It adds to our depression, which often accompanies any Chronic Pain Disease. We often refuse to go to the ER due to the Medical Profession seeing us as “drug seekers” and there have been too many tragic results from that sort of treatment. When we resort to the ER we are often turned away with scorn and feel humiliated and dehumanized.

So how can you help me or others like me to feel better?

  1. Do not criticize and listen with an open heart
  2. Do not pass judgment-it is hard to understand unless you experience it first hand
  3. Give us some Empathy because this is a real disease and very debilitating
  4. Give us some Understanding. Just try to understand when we describe our symptoms
  5. Lend some support, in any small way. Like offer to pick up something we may need if you’re at the store
  6. A gentle hug is sometimes the best medicine in the world
  7. Don’t minimize our disease. If you don’t get it then you can’t understand, but do not belittle us or scoff at our disability
  8. Recognize this disease as a disability. It is impossible to function with debilitating pain, nausea, vertigo, visual disturbances, diarrhea and the side effects of medication
  9. Realize we are NOT drug addicts. We need preventive pain management and abortive as well. We do NOT want to take meds but we have no choice
  10. Understand that OTC meds are not the help some of us need-our pain is too severe for something as easy and simple as that
  11. Do not get angry with us if we have to cancel at the last-minute on an event or gathering. This disease is very unpredictable and it controls our lives, we cannot control it.
  12. Give us some love. That’s all we really need is love and a hug.

 

Learn more about the MHAM Blog Challenge and 

Other MHAM events by visiting:

2013 Migraine & Headache Awareness Month Information Page

June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com.

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