My Mission thus far to search for Chronic Migraine coping tools to add to my Migraine Survivalist Kit-updated 5-3-13

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Oh the sun. It’s great for normal people but to those of us who suffer Chronic Intractable Migraines seeing the sun is like being set on fire like a fictitious vampire exposed to direct sunlight. The sunrays feel good on your body. but are so bad for the eyes. Making the Migraine attack more unbearable as the pain increases in sharp stabbing pains when outdoors, or even opening the living room drapes. I often feel like a vampire-more comfortable in the dark than outside in the bright sun. Overcast days are good as long as it’s not raining or snowing. We don’t ask for much huh? Photophobia is a common problem with most Migrainers and starts in the Prodr0me stages, but can last through most of the Migraine attack.

Over the past couple of years I’ve tried in vain to find the darkest tinted sunglasses possible to block out the glaring sun. But I have not hand much luck as to date. What appears to be dark-colored lens doesn’t always mean it blocks out that much of the light. I have lost count out how many pairs of sunglasses I’ve bought the past 2 years alone. Maybe 6 or 8? The ones that were just pure crappy I tossed them. The local stores do not have much of a selection to go by, and frankly my budget will not allow me to go to a specialty Migraine eyeglass manufacturer and cough up almost $200.00 for just one pair-and that’s not even RX glasses. So just today I went to Amazon and for around $30-40.00 I got 3 pairs of sunglasses hoping that these will work. They are biker glasses and have foam inside the frames so they fit close to your face and block out the wind. My hope is that they block out as much bright light as possible. So this is the selection of what I ordered:

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61snno8VyxL__SL1000_ Sunglasses for Migraine Survival. Got this pair today 4-27-13. They are not dark enough to block the sun as much as I’d like, but they are polarized so there is no glare.

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These don’t really block the sun that well, but my RX glasses fit inside perfectly and the foam padding makes these fit close to my head and are comfortable. I guess I will keep them.

So we shall see. Hopefully 1 pair that works will make me happy. Two and I’d try to teach myself to do cartwheels, even thought I’ve never done them before in my life and I’m notoriously a Klutz, and that is meant to be with a capital “K”.

I have used on a nightly basis my H2EO Ultrasonic Diffuser with a mix of Therapeutic Grade Essential Oils. Over the past 3 months I have collected over 50 different essential oils and a few books that have recipes and hints for doing your own blending. So I’ve tried my hand out at making my own blends for the diffuser as well as for massage oils.  The model I got is pictured below. It works quite well and has 4 program modes and holds 8 oz of distilled water. When it gets down to 2 oz it automatically shuts itself off. I have a big problem with manufactured scented products, but I have no trouble with essential oils.

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I have the Breo iSee 371 massagers which has been of some help. I’ve used it like crazy the past 2 days. You make it fit as snug as you can stand it and it will puff up with air, heat up and then vibrate to massage the sore temple and eye areas that are common with migraines. I do have to admit it is on the noisy side so if my migraine has me too sensitive to noise I will wear ear plugs. This runs on AC or Double AA batteries. If you use the batteries it’s portable and you can use it on car trips and plug into the base control unit the supplied earplugs to use the music feature. Or use your own MP3 player. The Breo is pictured below.

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I have also received and mixed for FM muscle spasms and pain Veterinary strength Absorbine and DMSO. 4 oz DMSO to 3 oz Absorbine in a lotion dispenser and rub on sore spots. I picked up this hint by reading some blogs. It smells minty and works pretty well although I do not recommend it for everyone. If Absorbine Jr. bothers you then you want to steer clear of the stronger stuff. And this is in no means an endorsement. These are just ticks and tools I’ve picked up to help me ride out my Migraine Storms. I have found this works best for ME than OTC pain liniments.

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I have also acquired and am using the Heavenly Accupressure mat. It feels pretty good to me but I’m use to this sort of thing. For others you will want to use the guidelines, if this is something you wish to try, by using it in 5 min increments and building up time. It is best if you use it on bare skin. I will lie on it for almost 20 min per side and really feel the blood circulating. This helps with the pressure point tenderness and pain and increases circulation.

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For deeper muscle penetration I have acquired and use on occasion The Soft Percussion Thumper massagers. It works deep into the muscle fibers unlike typical massagers and works out the soreness. If the FM flares up too bad and my tender spots on my upper back, neck and shoulders are too sore I cannot use it because it hurts too much. But when my neck and shoulders are really sore from a marathon Migraine I use this and would not imagine using any other type of massagers.

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And for those body aches that won’t go away and the Hot Epsom Salt bath doesn’t do the trick, I have this large heating pad that has a foam insert so you can use it wet or dry. My daughter has taken off with this and I will hunt it down after I’m done with this post.

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Also sometimes during a migraine when I retreat to my room and curl up in bed I take my microwave bed buddy and booties, as at times during a migraine it’s easy to get chilled and besides the bed buddy is great for shoulder tension and pain.

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And I cannot do without my oversized eye mask. Even though I made sure my bedroom is dark, with room darkening blinds, foam backed curtains and dark blue walls and no window in the adjoining bathroom, to a Migrainer in a full-on attack any light, even low light, has to be blocked or the ice pick occipital Migraine will peak at it’s worse (if it’s possible to get worse). So utter darkness is my friend, not my foe. Ironic that as a child I feared the dark. Now I crave it. What a reversal.

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And I cannot do with the most simplest of tools that I found out about by one of my Migraine Blogging Mentors. Plain ole simple Sea Bands. Wear them while I take my Zofran and chew on organic peppermint candy or take a whiff of pure essential peppermint oil-1 or 2 drops on a cotton ball is all I need. I found peppermint works best for me, ginger works best for others.

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Update 4-27-13

I just knew after I posted this I forgot some things that are in my Migraine Home Survivalist Kit. These help me ride out the storm when a Migraine Attack occurs.

My Cluttered Bedside

My Cluttered Bedside showing all my essential Migraine Survival Tools at arms reach

My side of Headboard

My side of Headboard with my aromatherapy diffuser, iPod, and a couple of bottles of essential oil rubs I blended

My Bedside Table

My Bedside Table with my Bedside Emergency kit in tote w/meds and notebook for recording meds taken

My Bedside Table

My Bedside Table Emergency Kit top layer-peppermints for sour stomach, stash of earplugs and saltine crackers

My Bedside Table

My Bedside Table Emergency Kit bottom layer-all my duplicate abortive meds, Rolaids, straws and q-tips, alcohol wipes for Imitrex Injections.

My Cluttered Bedside

My Cluttered Bedside on floor near bedside stand I have my Breo Eye massager, Absorbine, DMSO and the extra bottle contains the Absorbine and DMSO blended ready for use on FM pain or temple/head sore spots.

Top Drawer of my bedside table

Top Drawer of my bedside table contains my collection of Theraputic Grade Essential Oils. Kept in dark cool spot to use in diffuser or make oil blends-bottom drawer contains empty amber bottles, extra nasal cannula tubing for O2 and extra hand wipes and mints.

My side of Headboard

My side of Headboard up on top contains my backups of Migranal Nasal Abortive Spray and extra earplugs.

My Stash of various ice packs

My Stash of various ice packs in the freezer ready for my use. My favorite is the old fashion ice cap very upper RH corner-it lasts longer as the ice cubes slowly melt in the insulated bag and the outside is soft material so I can put it directly over my eye socket.

My Supplements

My Supplements, Minerals and Other Nutritional support for health and for Migraine support

Emergency Migraine Meds

Emergency Migraine Meds-comparison side by side. LH is kit I carry in my purse w/all meds needed for Migraine Abortives and RH is my bedside Emergency kit w/a double of my Migraine Abortive Meds. Pretty expensive to suffer from Migraines.

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I got a Buckwheat pillow for sleeping-after reading reviews it’s suppose to help w/neck pain and migraines. I got this 5-2-13 and already I can tell there is not as much pain as I had before when I get up. It’s a little stiff at 1st but actually has gotten a little more comfortable. I got also on 5-2-13 Badger Stress Soother Balm, Salonpas pain patches and CryoDerm Pain Relieving Roll on. The patches come in 7 pouches that are easy to travel with and they include 20 patches each travel pouch. Size is 2.56 x 1.65 so it’s for smaller areas. Wanted to get some larger ones for shoulder and back but too much $$.

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Today 5-3-13 I got Tiger Balm and Sombra Cool Therapy and Tiger Balm Extra Strenght to add to my Salonpas pain patches, CryoDerm Pain Relieving Cryotherapy Roll-on and Badger Stress Soother Balm.

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I got also 5-3-13 this bigger purse than the original one. It’s roomier and it is definitely the size of a carry-on bag but if I have to carry my portable kit along w/a couple of roll-on gels for pain it’s needed. The other bag went back.

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5-3-13 Inside view of new bag-larger and roomier but hard to tell from this angle. Won’t bore you with more pictures.

These are just a few extra tricks and tools that work for me that I’ve found them along the way. My portable Migraine Toolkit I listed in an earlier blog for tips and tricks I’ve learned to cope with Migraine along the way as it interferes with daily life. I hope you have found some really good tools to help you. Now I’m off to use my Bed Buddy-my neck muscles are pretty stiff from the past 3 day Migraine. So until next time wishing you all a Blessed Pain Free Day and be Happy.

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Blessings

Julie

This is not intended as a Medical site and this does not constitute Medical Advice in any shape or form.

Please consult your family doctor or a medical professional if you wish to incorporate any of these items into your Migraine preparedness toolkit. This is not an endorsement for any of the listed products. This is just the brands I happened to buy that I tried and found to be keepers.

26 thoughts on “My Mission thus far to search for Chronic Migraine coping tools to add to my Migraine Survivalist Kit-updated 5-3-13

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    • Thank you so much for your positive feedback, your kind words and for visiting my page. Blessings to you for a pain free day. Julie

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    • Thank you for visiting my site. I’m glad you liked it. I have to use the spell-check that comes in the free version of Word Press as that is the format I have. It doesn’t work as good as Microsoft Word that I am more familiar with. I’m sorry if my spelling bothers you. I do suffer Daily Chronic Migraines and the pain level does not fall below a 5-6 so the Migraine Fog as well as the Fibro Fog do play with my mind that is already wracked with pain. I try my best as blogging and interacting with people is very therapeutic. Blessings for you to have a pain free day. Julie

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